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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Think i said going for first 3 monthly blood test 2 weeks ago to see how doing on planequil no mtx and steriod worn off. well doc got me have diabetes screening also good news no pefectly normal glucose levels.not diabetic well in normal range.......... wbc are way up esr doc says very high for my normal range with ra/lupus,fibro crp this even higher wants me ahve it done again as had sinusitis at time of blood test,so ehes doen me form gotta go next week give chance make sure sinusistis fully gone. bit fed up about it as was in bed yesterday lare started friday not hot weather this time,as located only specific joints,hands,knees. ice packs i been using temporay relief. all sorts daft questions why off mtx etc didnt read my records etc. seems quite good apart from that. got lot new docs at surgery. so guess have keep using ice and rest till get more bloods done. must say my crp never gone up with inFection oNly Esr. OHH WELL. MELLY cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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oh mel so sorry to hear this bet you really fed up,
on the plus side brill about diebetics not having it
hope you manage to get plenty rest love Txxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,582 Location: Oxfordshire
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Sorry the bloods were high - how high were they? It may well be the sinus problems though and they'll have dropped again next week or it could be active RA as you're off the mtx now.
Love,
Amanda
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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Oh Mel, there is bound to be some light at the end of this tunnel.
Glad the diabetes test came back negative .... you surely don't need that on your plate as well!
Hope the joints start to feel better soon x x
Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Hi Melly, glad you didnt have diabetes. Sounds like the other results arent too good though. Let us know how it goes with the next tests. You have had alot to cope with recently health wise, and could do with some good news. Take care, thinking of you, (((hugs)))BARBARA
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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I wouldn't worry Mel.
WBC and ESR would be raised because of the sinus infection, and the CRP even if it hasn't done that before, it was probably the mtx keeping it down.
Love, Doreen xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 64 Location: Sussex
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Dear Melly,
So sorry to hear about your bloods, try not to worry (easier said than done I know) hope fully they will be better next time and if not perhaps they could adjust your meds?
Hope you feel better soon, sending hugs, Ellie x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Thanks well im in flare for definite gp said but just wants know what level without infection, my crp only ever been this high with flare. infection gone,and esr yes very true it goes up for me with virus or infecton for me crp never has he wants see both without infection. oh yes not all bad in fact most of it very good i mean no sign any lupus advancement which to me is most of my concern,especially as it wasnt controled when came off mtx. i dont go into numbers because we all vary so much me doc going by my normal range over period 2 years,and now establishing pattern not on mtx. . yes barbs is right i been struggling some months since abscess upset apple cart. so plan is book in for bloods at Gp surgery got phelbotoist there for next week. see what results are then call rheumy nurse. rheumy nurse i say casue i find gp only gives low dose stuff they wont give me the big depo like rheumy does and wont give oral steriod without rheumy agreement. basically walking is becoming hard,knees,doing anything with hands becoming trickier all this was much improved after depo shot. ive got fluid building up on knees anti inflammtories are doing NOTHING,so i shall be asking stop them for sure they havnt worked since i had only mild ra age 17 but they insited i try again. wbc ohh yes not woried or esr they will go down quickly now infection gone. al i know is glad taken seriously that there reason im hot around knees all time,hands all time,feet. so heres to next bloods showing clear picture. see when gp sees bloods they go cautious rheumy nurse ses them and at the levels id been at evn before came off mtx she would say oh my dear its all over show we need get the rains on this ra for you. so i shall definely call her when bloods done ask see her time is about due anyway. how often you all see a rheumy nurse casue ive only seen her Twice in 2 years. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,081
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Sorry to hear that things still aren't improving for you Melly. Hope the nurse can offer some advice after the blood tests.
Julie
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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thanks see how goes trying not focus on it or possiblity it being active,prob just a huge over reaction lv melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Melly, just to say I have only seen Laura once in a year hun, maybe we only get a visit a year!! nothing would surprise me!! BARBARA
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi Barbs oh you to ,well my last one was 2008 thats 2 years and not even mention of seeing her grr,guess its me not pushing enough be seen. they need more funds for another nurse but then we not alone many other rheumy clinics same. agony pain in finger joints tonight. despite 2 strongest painkillers. cat to vet again tomorrow lookin much brighter so hope just check up. sittin on bed with inky the luv bug cat. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Melly
Sorry you're still having lots of probs, but glad the diabetes levels were ok.
I hope your tooth is feeling better now.
Lyn
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 331 Location: South London
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Hello Melly
Good news that you dont have diabetis. I hope your next lot of blood tests are much better and those levels come down and you get something to reduce the pain. You have been having a rough time of it of late. Hope you have had time to sit and enjoy your garden. Happy to hear your cat is getting better
take care
Mari
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Thank you both oh yes sitting in garden now evenings only as less risk lupus trouble sun-lupus enemies. yes i may need different pain relief what i took last night did nothing at all or today hubby on way back from vet now with kitty. she seemed ok. gonna pick up blood form before end of week and get done monday. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 335
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oh good kitting being ok
u enjoy the time in garden
good luck with tests.
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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Oh Melly, you really seem to be having a rough time at the moment. At least there is good news that you are not diabetic.
I only have to ring my RA nurse's up and I can see one normally within a week or two, there is three. I have only seen two of them and they were really nice.
Take Care
Paula x x
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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 Hi Paula umm yeah rather thats good service we got only 1 yes 1 nurse between 2 major hospitals,funding. ohh yeah nor diabetic didnt think was not even remotley. pain medium today and life goes on. thanks all for support. melly cuddly cats make my world seem so much more fun
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,110 Location: London
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Melly, It's so annoying that different areas of the country have different amounts of staff for the same jobs!! If we need to see Laura its like trying to get in touch with MI5 Anyway, hope the pain is easing, and that all infection has now left you! Looking forward to next week end's meet up!! Lots of love x x BARBARA
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Rank: Advanced Member Groups: Registered
Joined: 12/3/2009 Posts: 1,740
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Hi hun yuove made me cackle with laughter good one M15 LOL!!! Thanks im off to seaside saturday all day in laws then park church service sunday,bible roup our place tomorrow night.so got all bits done today. tads swollen up lol fluid on knees still playin up lol good luck tomorrow for u. yes go for next bloods next week i dont have emm done guys i could have but i chosse shared care betwen them and my gp when first diagnsoed 2008. so gp give me form then i go community hospital get it done or gp nurse,last lot done super quick took only 1 day. look forward next sat to. got dentist on friday afternoon,shouldnt be much work corwn impressions hopefully. yeah hope all infection gone feels okish. bloods will tell. hands being a pain but much less now than 2 days ago could cut emm off and ask doctor who for new pair,and knees to. silly old ra. im feeling like i made big mistake just emotions as rheumy was going to put me on triple dmards therapy last visit then i said want child. ps i know what you mean wish they make mind up what you have dont have i was at that stage and do feel they still making chocies for me to. in terms of nerve damage or not they cartn seem to decide no idea what ask them regarding this,they talking about my hands,wrists,arms shoulders. didnt think ask why lol. will next time. melly cuddly cats make my world seem so much more fun
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